Monday, November 8, 2010
What a difference a year makes
November 3rd marked a year since I started treatment. Can you believe it ? November is also Lung Cancer Awareness month. More on that later. This morning we met with Dr Mackler and my case study co-ordinator, Ann Novak for last week's CAT scan results. As Joann told Paul afterwards , "I'm not calling from the Chevy dealer" so yes, the news was once again good. Thank you GOD. The larger mass that caused all this ruckus and last classified as near scar tissue has shrunk even more and the other that mysteriously disappeared in last August's scan is still MIA. Next February's scheduled scan has been pushed back to May because, 1. they feel I don't need it again so soon and 2. to give my kidneys a break from the contrast solutions that play hell with them.
And that pretty much says it all, other than I feel great and pushing a wheelbarrell full of acorns with a cute hitchhiker aboard didn't wind me a bit last weekend up in Port Austin.
Jo and I were invited to and attended the first annual National Shine a Light on Lung Cancer vigil at St Joe's in Ann Arbor on November 4th, one of 100 simultaneous meetings held across the country and the brainchild of the Lung Cancer Alliance, a grass roots effort initiated by Oncology professionals to bring lung cancer treatments into the 21st century (the program I was in), provide support for patients, families and caregivers and increase federal research dollars, especially for the early detection of lung cancer, which surprisingly, there currently is none. I'm glad Jo talked me into going. Terrific program presented by the cancer team at St Joe's and by now you must know how I feel about those people.
If you're interested, log onto http://www.lungcanceralliance.org/ It's a wealth of information, WILL cause you to quit smoking and debunks the many myths about cancer that we all should be aware of....and don't forget to sing in the lifeboat.
LIVESTRONG
Ken
Sunday, September 19, 2010
LXII and still in the game
LIVELONG
Tuesday, August 10, 2010
August CT
If the news was bad I'd be in my new Vette right now. GM lost another sale, the news was good. Very good actually.
Three months ago Dr Henning told us that nothing new "lit up"and that was a relief in itself. Yesterday he said the same thing and then added that a 5-6mm nodule that was present in the last CT has disappeared and the remaining two masses are close to half the size they were last April. Could it be that the teatments that ended six months ago are still perking ? Frankly, I was afraid to ask. Two more CT's @ 3 month intervals to go and if all is well, we shift to a 6 month schedule. This is dictated by the case study we're in rather than CT results.
I told Joe and Lorraine (before we got the above news) and I'll say it again, that all in all, this is one of the best summer's of my life. Hope you can say the same.
LIVESTRONG and please add my friend Brian in your prayers.
Ken
Tuesday, August 3, 2010
Sunday, August 1, 2010
70.3 ( as in MILES )
As Paul tells it, he didn't quite know what to do when I was diagnosed but felt he had to do something other than be angry. That "something" was to hit on everyone he knew for pledges to the Lance Armstrong Foundation in return for his competing in an Ironman 70.3 yesterday.
For the past many months he has trained, eaten right, drove by, instead of through Burger Kings, (notice how many are now boarded up ?) spent a substancial amount on gear and trained even more. Yeah, he's ripped, but this 70.3 still wasn't a walk in the park, not by a longshot ! Joann and I were in Benton Harbor yesterday to see Paul, Lo and 2000 other competitors swim 1.2 miles in Lake Michigan in a downpour, bike 56 miles on wet pavement and run 13.1 miles in the heat of the day, all in well under 8 hours. Seeing him cross the finish line is something we'll never forget, nor will he. Paul has been living strong, completed what he set his mind and body to do, honored his commitment to those that pledged over $1300 to a very good organization and brought this smiling old man to tears. It's all good. Thanks son, we're proud of you.
Your turn to LIVESTRONG
(Click on the picture twice to enlarge it)
Sunday, June 20, 2010
(Grand) Father's Day, 2010
Tuesday, May 18, 2010
Milestones ?
Then I got to thinking (oh no, not again !) of the milestones we all experience in our lives. Some of them are major, school graduations, your first car, first boat, first buck, first love, getting laid, marriage, becoming parents, becoming grandparents (that's Peyton @ two months, by the way) retirement and now, after a very long winter, how everyday occurances have taken on new significance for Joann and I. They're signs that things are finally returning to "normal " and "normal" is something a few months ago we thought was a thing of the past. If that isn't a milestone, I don't know what is ? Life is good.
Remember to save the earth, people, it's the only planet with chocolate
LIVINGSTRONG
Ken
Saturday, April 24, 2010
Round 2...
Ken
Friday, April 16, 2010
Two months later - April ,2010
Here's a couple of shots I thought were kind of interesting. The one above is of a soon to be first time grandfather (May 7th due date) at his daughter-in-laws' baby shower. Click on the picture to enlarge it and study the expression on his face - priceless. All these women yakking away and he's in his own little world, oblivious to it all. You can almost see what he's thinking.
And here's our little one, Peyton, at eight weeks old. Tried to get a shot of her smiling but you know how it goes with these new digital cameras. You wind up taking 56 pictures hoping to get one good one. While you're punching buttons to see if the last picture was "the one", the baby is smiling. As soon as you aim the camera and make goofy "this ought to make you laugh" unintelligible sounds, she looks at you as if saying "hope you have enough battery left Grandpa". Peyton also has twice as much hair as I do.
Sunday, March 28, 2010
Wardzinski Hair Clinic
I realize this may be mildly disturbing , but you should see me w/o the hat !
And now my top ten reasons for wearing it:
10. Since I ended the blog entries no one will see this picture but me
9. It goes with my entire wardrobe (now THAT"S disturbing!)
8. The headliner in my truck has never been cleaner
7. I have something to scratch when I'm thinking, other than my ass
6. My lousy golf swing isn't as noticable with everyone pointing and saying "Look at the freakin' head on that guy"
5. I finally have something my son's won't borrow, at least not until Halloween.
4. When people give me a funny look, I get to say "It was a gift".
3. I fit right in with the Wal Mart crowd, especially at the Pharmacy..hmm
2. I don't have to call the doctor if it stays "up" for more than 4 hours...
not like that other thing....
1. Wearing it makes Avery laugh
Lorraine was right - it's time to start having fun again.
Tuesday, March 2, 2010
BLOGS END
I read a definition of friends long ago.. It went something like "they are met by chance and become friends by choice". I haven't the words to thank all of you for what you've done for our boys, Joann and I, so I'll just say thanks and hopefully one day this summer we'll have a beer together around a beach fire...share one of those quiet moments everyone seems to enjoy. I'd like that.
Just so you know, the A+ grade wasn't an exageration on my part. The two tumors have shrunk and are close to being considered scar tissue. Lung function was minimally affected from the treatments and no new spots "lit up" on the CT. ECG says I have the heart (and disposition) of a mule. The doctors expect to see even more improvement in June's CT as this one was rushed due to the patient's lack of patience (Moi?). In their words, the chemo is still working.
Too bad there isn't any Rogaine in it... The A+ grade is for the team that formulated "The Plan" and the techs that put it in motion. Hell, all I had to do was show up everyday and lie still.
EARLY DETECTION - the longer you wait, the worse it gets, and it can get very bad very quickly folks. I went to the doctor's last September for acid reflux - had a chest x-ray because I hadn't had one in two years, was told it showed an upper respiratory infection and started on anti-biotics...guess what ? That "cloud" wasn't an infection at all. And so it began... Annual physicals folks - don't put it off.
I have no dilusions that I am cancer free, but am very relieved we won round 1 of what will be a lifetime of vigillance and cautioned wariness of reoccurance. Next CT is in 3 months - round 2.
Can't say enough about the cancer team at St. Joe's. I described them once as "making the unthinkable bearable" but they do much more than that. What they see and deal with everyday I can't imagine, and they do it with compassion and unparallelled professionalism. I grew close to many of the techs in the treatment centers. They were terrific and added to my short list of heroes.
So that's it. Thank you again everyone for your friendship, words of encouragment, thoughts and prayers. Joann, the boys and I needed and enjoyed your company on this leg of our journey.
I wish you all good health and an enjoyable summer. And don't forget to LIVESTRONG.
Ken
and now, as usual, Joann will get in the last word ....
Again, Ken has said it all. He's a tough act to follow. He's surprised me by sharing his feelings with you the way he has. He's pretty opinionated, but wearing his heart on his sleeve, not so much. I would also like to thank all of you for your support. These past 5 months would have been much more difficult to face without it. Once again we have put the "in sickness and in health" clause of our marriage vows to the test...and survived.
Ken has enjoyed all the responses. I know he will miss "checking his blog" at least once a day. This is your last chance to write a comment if you'd like, I know he reads them. Some of them have been very touching. We received great news on his latest CT, but as Ken said, we have a long way to go. I know the future tests will have both of us holding our breath, but we've decided not to let it interfere with enjoying our family, friends and of course, our granddaughters. What do you think of Dr. Avery taking care of Peyton ?
Thanks again, please keep us in your prayers.
Joann
Monday, March 1, 2010
FINAL GRADE 03/01/2010
Sunday, February 21, 2010
Friday, February 19, 2010
Nothing like holding a new baby
Thursday, February 18, 2010
HOT DAMN !
Goodnight for now -
BABY ON BOARD
Anytime now. Matt and Kate left for St. Joe's a couple of hours ago.
Things sure have changed. I remember fondly the unannounced mad dashes to the hospital years ago with a V E R Y pregnant Joann riding shotgun - telling me I better step on it...running red lights and hoping a cop would stop us. Pulling up to the emergency room entrance and seeing everyone move like they were shot out of a cannon. Pretty cool.
Now they call and make an appointment.
I like the old way better.
Photos of our new granddaughter to follow ...soon, I hope.
Sunday, February 7, 2010
Gotta love February
Sorry I missed the co-op winter get together last weekend. Always nice to be around so many people that look forward to summer, especially since we're just into February.
Joann has scaled back on my plan to demo the kitchen up north. She wants me to do something "less destructive"...takes all the fun out of home improvement, but there's always something that needs doing up there.. or maybe it's just that I like having projects to do.
Good things are going to start happening here in a few weeks, Matt's 32nd birthday, a new granddaughter and my final exams on the 22nd. And Saturday was the eleventh anniversary of my stroke. So all in all, this has been and will be a good month.
Joann did a good job on the last blog - I think she should do it more often, eh ?
Next time we'll post pictures of Avery's new sister..can't happen soon enough according to Kate
LIVESTRONG
Tuesday, February 2, 2010
Happy dance !
These last four months have been the toughest times we have gone through together. We've prayed and cried and even laughed at times, but have made it so far and will continue to together, no matter what the future holds.
I have faith that the doctors and nurses have seen enough to know what signs to look for, pain, bleeding, difficulty breathing, huge weight loss etc, to see that Ken is beating this. Thanks to all of you who read his blogs and continue to encourage and reassure him, and me. It's been an important part of the healing process. I hope you have enjoyed his perspective of what he calls "his first rodeo".
This month will be exciting as we welcome our new granddaughter, due within the next 2 weeks. Such a happy and exciting time!!
Thanks again for all your support
Joann
Monday, February 1, 2010
Let 'er rip doll
Monday's bloodwork came out OK so today's (last) big cocktail was a go after we met with Ann, my case study gal and Dr. Eisenberg, an oncologist whom Joann and I like very much. I asked to have my final CT scan like tomorrow ( anxious? me? NAW ) and was told I'll have to wait a bit longer to get an accurate reading. They explained that radiation and chemo are akin to cooking rice - it's still perking after you take it off the heat - takes time for everything to "cool down". OK, so I wasn't happy about the timing but today was not the day to tell these people their business. Hell, I can't SPELL, let alone pronounce, half the things they DO...patience isn't one of my stronger virtues...
Feb 22nd is the earliest date they would agree to - results due March 1st. I'll be going through a CT, another lung capacity test and an EKG... then I'm going to take Joann out for a very nice dinner and have my first beer in four months. Hot wife and a cold beer. Life is good.
Last cocktail was uneventful if you don't count the four attempts to thread a 22 gauge needle in the vein. Sue was having a time of it and finally Robin came over and got lucky on her first poke. If the saying "No pain no gain" is true, we gained a b u n c h today. The next two weeks will be trying as the big dose does it's work, but we survived it once already and besides, there isn't much else that can fall off...is there ?
Mixed emotions after more hugs and walking out of the clinic today for (hopefully) the last time.
So glad it's over, so fortunate the side effects were minimal, so embarassed I was such a wus about them and so blessed that I had Joann and the doctors, treatment nurses, family and friends for support over these past 91 days. "Thanks" doesn't nearly cover what I want to say, but there's alot going on in my head right now, so it'll have to do for now. So Hey, THANKS and as always...
LIVESTRONG
Tuesday, January 26, 2010
Fall in January
Hair loss, which I've heard about since day one, began just two days ago and took me back a bit. They didn't tell me the fallout is from e v e r y
w h e r e ... nuff said, but I still have to shave, go figure. Interesting comments to the last blog about the soothing effects of fire - no wonder it's so quiet on the beach at night.
Would like to ask you to include an old friend in your prayers, if you wouldn't mind. Found out recently that Sam has been battling a rare form of lukemia for the past year. Here I am acting like a big baby complaining about being poked a lousy eight times for infusions and Sam has gone down that road over a hundred times in the past twelve months with no end to his "plan" in sight. Yeah, he's a fighter...anyway, thanks.
Will write again after next Tuesday and hopefully have a CT date.
Ken
Thursday, January 21, 2010
Light one up
I'm interested to hear what you all think about while staring at the flames. Need help? Light a candle. Consider this our first interactive blog. This time I want to hear about YOU.
Don't be bashful.
LIVESTRONG
Saturday, January 16, 2010
The Good Stuff
Wednesday, January 13, 2010
JUST A QUICKIE
Yesterday's cocktail went well due in no small part to having my favorite nurse, Robin there for the poke. Robin was my first infusionist when all this began last November and came up with the "go to your happy place" phrase. Funny how more comfortable and relaxed I am around people I trust. Five hours later I was out the door. I made an appt with Robin for my Feb 2nd cocktail promising her Joann's brownies as a bribe.
No adverse side effects so far and I hope they don't appear at all. Just have to be concious of running a temp - infections are a no-no with low WBC counts. The doctor's harp about it all the time - must be something I don't want to experience. Thought I was running one this morning but it turned out Jo had a hot flash last night and threw all the covers on my side - problem solved - temp @ 98.6.
Jo and Deb are going shopping again today so Ric and I better cash in the empties... It's a gorgeous winter day, I hope you all get a chance to enjoy it. Talk to you again soon -
Ken
Monday, January 11, 2010
Make mine a double
Have been doing very well thank you since my last radiation Dec 18th. The back burn is completely healed and I'm nearly keeping up with Joann during our nightly walks at the local high school. It's kind of embarrassing being passed up by the local grandma's that hike the halls also, but it just reminds me how far I've yet to go. Bet I could take most of 'em in arm wrestling..
The attached photo taken this Christmas is of my youngest son, Paul and our Cioc. Everyone has a Cioc, you just don't realize it, but your's likely isn't like mine. You see, mine is also my guardian angel and she has God's ear.
LIVESTRONG